So gutwrenching...

So, I was checking blogs from friends, because, yet again, I'm having trouble sleeping. And one particular site I checked referred me to a site called http://www.charliecooperjackjack.blogspot.com/ . My heart fell out of my chest for this family, they are living my worst nightmare.

Kyleigh and I caught that wierd flu about a month and a half ago and were both sick for about 5 weeks. It slowly evolved into sinus infections for both of us, and tapered off to colds, but it was a long 5 weeks. I don't sleep when she is sick, which might explain why I'm having a hard time now, because my schedule is all thrown off. It was bad enough one week that she spent 3 days sleeping in the swing in the living room (me on the floor) because it was the only thing that would sit her up high enough to breathe. We even had to go to the respiratory therapist at UVRMC to have her nose and throat "vaccuumed" out so she could breathe properly, and eat a little more. I think she lost about a pound and a half during that time because she just couldn't get enough air through her nose to be able to eat.

That vaccuuming thing is killer. I had a hard time because I was the one that had to help hold her down while the therapist did his part. He had to stop a couple of times because I just broke down bawling because she was so scared. The second time we went she actually went into panic mode, and her heartrate jumped to about 170. It was, so far, the scariest thing we have been through, and I am sure there will be more.

I just hope that when those times come I can have 1/2 the faith and and trust and strength that this family has. It just breaks my heart, so much, that a baby can be fine one day and the next be so sick. I hope that Bryce and I never have to go through that, because I don't know if I would be able to hang on like this family has. They are truely amazing and beautiful people, and I pray that their little Charlie Cooper "Jack Jack" will be able to kick this.

(p.s. I did go back to the beginning of their story to find out what he has and it is Pneumococcul Meningitis, which is one of the diseases that all babies are immunized for at 2, 4, and 6 months. For some reason his body couldn't recongnize how to fight it off, but he sounds like he is a fighter. I hope and pray that things will improve and that the Lord will continue to bless him and his family.)